Monday, January 17, 2011

Two weeks and counting!

It has been a rough two weeks, but I am so thankful to say that God has brought us through with flying colors. Sammy is doing well. He is drinking very well now, and I thankfully have no concerns with his hydration status. Food is still a bit of an issue, but he has STOPPED losing weight! He is back to 34lbs and hopefully I can fatten him up. He is playing and not quite as irritable.
And although he definitely had some apnea last week, last night he DIDN'T!!! They have said that it could take a full four to six weeks to know whether the apnea will be completely eliminated. But for now it is looking positive. They said we would need to repeat the sleep study probably so that I am sure is something we will be scheduling soon. We have pulmonology and immunolgy in the next two weeks. And then GI and hematology in february. ALWAYS something!
I had my follow up for my back today. I had gotten so anxious just prior to Sam's surgery that they were going to give my job away, or say that I had to come back full time the day of his surgery. But as always God prevailed, and everything was put on hold. Today I went and they are going to continue to the partial shifts, as well as the no lifting for another month. I am still awaiting an appointment with the back specialist but I am not sure when that will be
When Sam had his surgery my wonderful friend Meg came with me. I truly don't believe that I could have made it through that day without her. I was a mess, and she was truly God's hand extended to comfort me. She was so thoughtful and brought along her I-pod with some beautiful inspirational songs on it. I was so deeply touched by one of the songs, but sadly could not find it to share with you on YouTube. If you google "How would I know by Kathy Troccoli" it will take you to her site and you can listen. And I highly recommend that you do. THis song has spoken so much to me, the lyrics are below....
"If it wasn't for the times that I was down
if it wasn't for the times that I was bound
for all the times that I wondered how I would ever make it through
all the times that I couldn't see my way and I had to turn to You

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs
Lord I appreciate the hard times otherwise how would I know

I remember all the times I had to cry
and at the time all I could do was wonder why
Why would a God so kind and loving
allow me to go through all this pain
if I could see into the future
then I would know the joy I'd gain

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs
Lord I appreciate the hard times otherwise how would I know

How would I know that you could make a way out of no way
How would I know if I never had a need
Brother I know what your goin through
Sister I know cause I've been in your shoes
But I can truly say that I know what God can do

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs


Lord I appreciate the hard times otherwise how would I know

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