Auntie Chantal came to visit and spoil us (AGAIN)
Sam did much better last night! Praise God!!! He vomited his evening dose of medications, but he tolerated a small amount of food, and few ounces of liquid. He slept really well.
I have been playing a game with him today, trying to get him to drink a lot of fluid. THey want him to have the equivalent of what it would take to keep a two to four year old hydrated, even though they think it should be more. They feel as though if he gets the required 24ounces in a 24 hour period that he will be safe to get out of here. So I have been lining up medicine cups (they each hold one ounce) and playing a racing game to see who can drink the fastest. It takes him like five minutes or more to swallow the whole ounce but he is working on it, and we are making progress.
There is discussion of discharge this afternoon or evening if I can get enough fluid into him. THey also decided that the amicar that he is on (to help him clot) could be decreased, as this may cause nausea. So they cut the dose in half!!! I am not quite sure how I feel about this yet, as I feel like if they cut that medication in half he is at a higher risk to bleed. But on the other hand I don't want him vomiting either, but they can always correct vomiting with nausea medicine and IV fluids, but bleeding would be more complicated....