Cousins

Sam and Sophia got to meet Darius today. Sam was beyond excited. Sophia was playing the little mommy as far as covering him and making sure he had toys. And then she wanted him in his bed because he was sleeping. Sam was much more interested in holding him and snuggling with him than I expected. He was asking if he could hold him as soon as we got there, and then whenever he wasn't holding him he was asking to. Even a friend came in to see Darius and Doreen while we were there and Sam said that her time was up after five minutes or so!!! It was so funny. He held him a majority of the time we were there and he was in his glory. He has been asking for about the last six months or so when we are going to have a little baby for him, I am sure that this experience is only going to exacerbate this:-)
We had a relatively uneventful visit medical wise today at MGH. There were some other things going on that I will write more about tomorrow. And then there is the fact that the pulmonogist called while I was on my way home and left a message saying he wanted to discuss Sam's sleep study with me. Now I am trying not to be nervous about it, but I kind of am. We have an appointment with the pulmonologist next week (which is when I was told that he would review it with me), so now that he has called I am wondering if there was something on the sleep study that is more concerning to him and he wants to work on it before next week?
My verse for the day:
Phillipians 4:6 Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your request be made known to God

Sounds more complicated than expected....

The most recent time we were at the hospital, over the winter. Just hanging out and taking a nap


Posing with one of the nurses. He has them ALL wrapped around his finger8-)


Talking to Daddy on the phone last year when he had the scope done that lead to us really knowing that he had a bleeding problem...


Since we couldn't go play outside, Meme' took him for a ride on his IV pole8-)


Thrilled to pieces with his clear diet: He was so excited to eat as many popsicles as he wanted

Had a lengthy conversation with the charge nurse where Sam will be having his endoscopy on tuesday. She was confirming with me the details of the plan, and going over the hematologist's plan to pre-medicate Sammy for the procedure to help prevent hemorrhaging. Only I wasn't informed of this plan until this nurse discussed it with me. She also wondered if Sam would be staying overnight just to be observed which makes sense but I didn't even think about this, and GI doc didn't mention anything about staying over, so I am not sure what the plan will be now. If they are going with the hematologist medication plan we have to go in a couple of hours earlier so they can give him the medication via IV, if they don't then we just have to go in an hour prior to the procedure. Sam of course doesn't mind staying over in the hospital, he thinks it is kind of fun. As seen above in the old picture:-)
I am thankful that I will be able to stay with him until he is asleep, so at least he won't be afraid or feeling alone. And they allow me to be with him before he wakes up so I will be there when he opens his eyes. They will be intubating him which always makes me nervous but I know that God will be with him through it all.
It is so strange, this emotion of fear. I know that God has called me to not be afraid. But talking with this nurse tonight has certainly made me anxious. She kept asking me all these different questions about each body system and since the last procedure there have been several new issues that have arisen: the difficulty regulating his body temp, the increased bleeding, the difficulty with swollowing with gagging/vomiting, the apneic and bradycardic episodes....
Trying to F.R.O.G- Fully Rely On GOD!!!! Ps. 22:8 - He trusted in the Lord, let Him rescue Him; Let Him deliver Him, since He delights in Him!