Phew what a week!

Wow this week has been such a trying week. I know that God has walked with me through it all, but it hasn't been easy. The funeral for RJ was on tuesday and it was very sad but beautiful. I think it went better than we expected, God held each of us through this very sad day. Many family and friends were there in support and we are so thankful.
Wednesday Sam had an appointment with his immunologist. Now the last few times we had seen him we had each time discussed stopping the transfusions in march. I have been eagerly counting down the transfusions we have left. Well this week he said now that he wouldn't consider it until april or may, and that we would actually have to evaluate it then. So he isn't even really saying april or may, just that we will talk about it again then. I am so disappointed about this. I have just been praying and anxiously waiting for this part of Sam's life to hopefully be behind us. The immunologist is wonderful and I trust his judgement I am just disappointed.
Sophia is also sick. I actually ended up bringing her in to the doctor today as tylenol and motrin couldn't get her temp below 101.5 today. Poor little thing. She was pretty quiet and wasn't eating or nursing well. She doesn't eat well anyways:-) But wasn't nursing well. So we went to the doctor and the poor thing basically has red ears, red throat and inflammed sinuses. Nothing was like horribly infected, but the doctor was considered with her temp being that high even with medication. So we started antibiotics today, and did blood work which came back that she does have some type of infection going on. The antibiotic is already causing diarrhea, which is concerning as she isn't eating/drinking well anyways and now she will be stooling a lot too. Not to mention I am so nervous that she could get C.Diff like Sam had. She is more at risk than someone else just becuase of Sam's history. So please pray for her that she gets/feels better soon, and also that she doesn't get C.Diff. That is totally making me anxious.
These are some random pictures from this week and last, before Sophia got sick. Thanks again to all of you who have reached out to me and our family during this sad time.

Thankful

Wow, what a week it has been. This week has been one of the hardest weeks of my life. I am so thankful to God that He has walked each step of the way for me. That He has put many in my and my families path that have been so comforting to us. To all of you that have prayed and gone out of your way to reach out, THANK YOU!!!! We are making it through this terrible sadness. God is carrying us through you. So many have called, so many have come and we are just so blessed. I sometimes take it for granted that we have such a tremendous supportive network of family and friends. Thank you to all of you who have reached out to us. The loss of RJ has come as an incredible shock to all of us. I ask that you continue to lift us up in these coming days and weeks, especially on tuesday as we plan to say our goodbys to him. Please pray for Denise and Ron, that they get peace in this situation, strength and hope. That they are just held in the palm of our Lord;s hand and that they truly will feel Him all around them.
Thanksgiving is truly a time to be thankful, and although we have lost this beautiful little angel boy this week, I am truly thankful for my God who is still upon the throne, My God who is carrying us through this valley we are in. My God who provides people in our paths that say and do the right things at the right time. My God who is providing employment and finances, my God who has Samuel and his health in His hand. My God who is building and strengthening my marriage. I am so thankful that I was there for RJ's birth, that I could hold him and pray for him, and that one day I will see him again. I am thankful that he is not alone and that He truly is God's child now. I know that there are hard days ahead, but I know that as God has walked each step so far with us, that He will continue to walk with us.
Again thank you to all of you for your prayers and support, and please continue to pray for Ron and Denise as the funeral will no doubt be very difficult. Be thankful for your blessings, be thankful for your family, be thankful to God who is there in each and every situation that we will ever face.

Unimaginable sorrow

As I write this tonight my heart is truly broken, words cannot express the sadness that flows through me at this very moment. My sister Denise and I went for an ultrasound on monday and while there we found out that her baby had died. She had to go through labor and deliver him. He is the most beautiful little boy with a head of silky black hair. He is perfect in every way. Denise is unbelievably strong and she was amazing through the labor. And as I watch her and Ron holding Sophia I can only imagine what is running through their minds. I don't know why they need her right now, but I know that whatever they need we will do our best to offer. Pray for Dasanee and Davion as they are asking so many questions and are too young to understand.
If you are reading this I ask that you would just lift Denise and Ron and their other children up in continual prayer as they walk this path of unimaginable sorrow. As thanksgiving is tomorrow remember to be thankful for your family, don't take for granted that you will be together tomorrow. We are never promised a tomorrow. We are promised eternity and we know we will see RJ one day again. I know for now he is in the arms of my Savior, but right now we want him here with us. Pray for us please.