Swingset

The most beautiful faces in my world

GI

Can you guess what this is???

Sammy built a "pretend campfire" for his sister and his friend. He is already a little outdoorsman just like his daddy


Alex and Sophia: Best buddies


Sammy is so proud of himself that he can go down the fire pole all by himself


Sam taking Sophia and Alex to the playground, and holding on to keep them safe:-)

I must totally give God the glory for the wonderful doctors that He has given to us to take care of Sam. As I said I was so very concerned about the colonoscopy for Sam, in light of the hematoma/hemorrhage that occured previously. Well today I spoke with the GI doctor at MGH and he was so wonderful. He listened to all of my concerns, didn't try to change my mind, and essentially validated my feelings, and agreed that the colonoscopy would be unnecessary at this point. So at this point tuesday will just consist of the endoscopy and baring any issues with anesthesia or bleeding we will be home tuesday evening. Please continue to pray for this situation.
In other news my poor Sophia hit her face hard on the train table this evening.:-( She looks absolutely pitiful. I was questioning whether she may have broken her nose but I am unsure. We did some ice and some pain medicine, and she is sleeping for now. We will see how it is in a while. Please pray also for her, and for a speedy recovery.

:-(

Sammy figured out the fireman pole and did it completely by himself for the first time today:-)




Feeling so overwhelmed and sad. As a nurse I know the risks involved with having tonsils and adenoids removed, I know the risks involved with having a kid with immunology and bleeding issues go to surgery. And to say that I am TERRIFIED would be the understatement of the year. It is so strange, I went in today believing that he would tell me that the surgery needed to happen, I have known this probably since march or so, but have avoided this appointment. I have had this thought that this was going to happen, so why now do I feel like I just got the life sucked out of me?
I can't believe how I am feeling about this. It is stupid really, but here I am panicking about a surgery that is performed on thousands on a daily basis, and most do perfectly fine with no complications.
And then there is the faith issue, I ABSOLUTELY KNOW WITHOUT A DOUBT that God is 100% in control of Sam and all that is going on. I know that God will be with him and that all will be ok. But is this fear of the unknown which is so tormenting me at the stage we are at now. So I covet your prayers, for all of us. I am so thankful to have some friends/family that are being so supportive and loving and helpful at this time, and it is with them and the Lord that we will move forward with this plan to remove Sam's tonsils and adenoids.
In other news, apparently there is some hearing loss in Sam's left ear. It is mild, but the doctor believes that it is probably congestion related, and that with removing the tonsils and adenoids things will drain better and that he will get that hearing back.
We did get to play today after the appointment which was so good for all of us.

While we are waiting...

STill waiting on the official word as to whether we can do the IVIG locally, so instead of waiting anxiously we went out and enjoyed this gorgeous day that God gave us. And I got to play with my camera:-) We got to play with Hunter and Hazel too. There is this crazy rock at the playground that the boys all love to climb on and today JUMP OFF! Another friend was teasing me saying that I would be actually photograping in slow motion Sam getting hurt! As you can see from the pics above Sam absolutely loved jumping off, and the camera took 25 pictures from start to finish. So I have a feeling I will be getting some good action shots in the future.

Playground fun

Goodness we have had some busy days this week. We had a great playdate with our friends today and while there Sammy said he had to go pee and had a large bloody BM. In discussing this with the GI doctor down at MGH, we devised a plan on what to do with Sam. I am feeling fairly comfortable with this plan although obviously I would much rather not have to have a plan for him bleeding, and to have this problem resolved.
Keegan made the trip all the way out here to join us for our playground. Sam was super excited to see Keegan, and almost exclusively played with him prior to even acknowledging anyone else.

Playground fun

If you look at the picture below this you can see Sophia peeking through this same window!!! This is one of Sammy's favorite playgrounds because everything is so high.


See he LOVES all of this climbing stuff, but it totally gives me a heartattack. He just flies up these pieces of climbing aparatus and it scares me to death. It would be one thing if we didn't have a bleeding disorder, but since we do it is a whole new ball game, but I don't don't want to keep him secluded from real life

Playdate with friends

What a fabulous day we had. We invited a bunch of our friends out to the playground with us. I don't have pics of everyone but we had 10 moms and 20kids!!! It was such a wonderful start to hopefully a lot of nice weather this summer. My two ran almost non-stop the entire time we were there. And speaking about running, I am at a loss as to what to do with Sophia. She has gotten it into her head that darting into the road is a fun game. And I have NO IDEA how to stop this behavior. We have tried multiple time outs, we have actually left the playground/walk/our yard etc trying to punish her. Today she actually did this multiple times, to the point where the last while we were there I held her and wouldn't let her go, and she wasn't happy about it. But if you have any ideas on how to fix this let me know:-)