Immunology and Pulmonology

Sam had two appointments today. One at Children's and one at MassGeneral. Both went fairly well. We saw immuno first. I think he may have been thinking about attempting a trial off the IVIG this spring, before he read the chart and recent trips to the hospital and heard about the sinus infections, URI's, etc etc. That would have been awesome to see if we could be done with this part of our lives. When he discussed it before he said he would only do it in the spring, as he didn't want him to go into the winter completely unprotected if his immune system wasn't going to kick in. So I guess that means another year of IVIG:-(
We then went to pulmonogy. THis appointment went well. The doctor was pleased with the fact that his sleeping has improved, and that he seems to have more energy and spunk. He said he wasn't "overly concerned" about his breathing, just slightly. I am hoping that we can not have to repeat the sleep study, but we shall see. We go back in three months and at that point they will decide if it is necessary. Or if I think he needs it sooner then I just need to call.
Oh guess what? They said he weighs 36.4lbs!!! He has gained his weight back! And he is 41 and 1/4 inches!!! Growing:-)

Winter Fun

Today Matt, the kids and I all went over to my parents for the afternoon. We had a great time. There is so much snow right now that the kids can't even really walk around in the snow. So at my parents house in the backyard my dad snowblowed a large part of the yard into a huge pile. Matt then built steps into the pile and made a trach for the kids to sled down. Sophia went once by herself and then didn't want to go again, except she went with Matt. Sam went several times and had a wonderful time.

We also got to spend some snuggle time with sweet Darius! He is smiling and cooing now. It is so amazing to see my little baby holding a real baby. It feels like so long ago when Sophia was tiny, and then to see her holding Darius, :-) Makes me wonder how she would be as a big sister

Preschool, playgym, miracles and Chest pain:-(

Sammy had a great day at Preschool today. I was able to speak with his teacher for a few moments after class to see how he is doing since he was gone for FIVE WEEKS!!! She said he is doing well. At the beginning of the year she had mentioned how sometimes children (especially boys) who have late summer birthdays are not quite ready for kindergarten when they turn five. I kind of have had that in my head this whole year. I was talking about it with her a little today, he doesn't do very well with his paperwork (letters, drawing, etc) but other than that he is doing very well. So if there is anyone out there that has chosen to keep their child in preschool an extra year, or send them to kindergarten what helped your decision?
We also got to go to a local "playgym" today. The playgym has one of those inflatable jump houses, slides, balls, monkey bars etc. We got to meet several of our friends there. The kids had a wonderful time. And then I got to meet this precious little miracle:-) I was praying for this baby before she was even conceived. I had taken care of her older brother in the hospital, and spent a lot of time talking with his mom. We have become friends, and she now attends the MOPS group that I go to. I was so excited to hear that this precious little love was on her way, and meeting her today was such a reminder of God's amazing love and miraculous ways.

Sam and Sophia had a blast running around with their friends. Sophia seems quite talented when it comes to soccer and she really enjoyed it.

We had a wonderful time and then came home for lunch and quiet time. Sophia took a little nap, and hten when she woke up Sam fell asleep. When Matt came home from work, we were talking and Matt commented about Sam's color changing, and then he started coughing. He woke up. And after he woke up he started complaining that his chest is hurting. Not sure what this is about, but praying it is nothing.

I Samuel 1:27
I prayed for this child, and the LORD has granted me what I asked of him.

Thankful Thursday

Today I am thankful:
-for my beautiful children
-for Sam's recovery and no further bleeding since sunday
-for my husband
-for my job
-for my family
-for my friends kindness, generosity, love and encouragement
-for doctors/nurses that care about Sam and take wonderful care of him
AND MOST IMPORTANTLY...
-for a God who loves and forgives me inspite of all my flaws.
What are you thankful for?:-)

Rainbows

Sammy has been going to Rainbows (kind of similar to Boy Scouts, but the Christian version) since last year. He has really enjoyed it. They do all kinds of crafts, activities, stories, etc. He has made lots of friends, and has been looking forward to the awards ceremony, which was tonight. Only he WOUNLDN'T GO UP ON THE STAGE!!! He didn't want to have anything to do with going up there unless I went with him! Oh well! He has earned five badges this year so far. He has absolutely wonderful teachers, and I feel so blessed to have him apart of this wonderful ministry.

IVIG

Sam had his IVIG today and as it seems to be the trend lately they had a tough time getting the IV in:-( He cried as soon as they pulled the IV cart in, between the ER on friday and the surgery he is COMPLETELY DONE with the medical issues right now. Poor guy! We see the immunologist next week, I will be curious to see what his thoughts/plans are as we move forward with the IVIG, if/when their will be a trial off it again, dosage changes etc etc.
We haven't had any more bleeding since the mild bloody nose last night, so I am so thankful. We stopped the amicar last night, so I will be praying that we have no recurrence of bleeding now that he is off.
We had a wonderful playdate today with lots of friends. It wasn't planned to be this way but we ended up with 9 kiddos here today:-) My house is going to take a while to recuperate but I am glad that Sammy is feeling up to running around and playing and making a mess with his friends.
Preschool tomorrow, then another playdate, and then MORE SNOW!!! I am done with winter I have decided. The negative temps, and wind chill are bad enough, and then the snow is so deep the kids can't even play in it. Oh well! Spring is coming right???

After 3 weeks!!!!

After 3 weeks my handsome little guy FINALLY made it back to preschool today. The teacher seemed kind of nervous, as was I. But I know that God will protect him and that if I keep him out until all things are well and healthy he might never get there. He is feeling fabulous, he hasn't had any bloody noses the entire weekend, and like I said GOD WILL PROTECT HIM!! So I have a very happy little guy on my hands tonight, he had a lot of fun playing with his friends today. Tomorrow we are having another playdate with friends we haven't seen in a while, then we are heading into Childrens for his IVIG. And then wednesday another playdate. I am so thankful that God has placed so many wonderful people in my life, and in the lives of these kiddos:-)
In other news I did another shift at the hospital last night. It is hard to believe it has been six months since I hurt my back. And even harder to think that I may never get back to the baseline that I was at before. It is hard doing (in my opinion) NON-NURSING nurse work. I mean what I am doing is still important, but it isn't at all what I have in mind when I think of a nurse. And so I am struggling with "this new normal" and praying that soon I will get back to the place in which I can work in a setting at which I feel fulfilled and where I feel God calling me to go.
I also had a doctors appointment for myself today. I went to a specialist and got some information regarding my medical health as well as future medical decisions. I am surprised (in a good way)/ and disappointed in the results shared with me today. I know God knows and His plan is perfect so now we will just be praying for God's will in this situation

Sweet Dreams my angels:-)

They just love each other, and I just love them:-)

Psalms 37:7
"REST IN THE LORD AND WAIT PATIENTLY FOR HIM"

Children's Hospital ER

So I have always tried to avoid the ER at all costs, after today if the suggestion is to go to the ER at Children's I will go in a heartbeat. I won't argue or balk about it.
AFter calling our primary's office the suggestion was to call the hematologist. Sam's hematologist was off so I spoke with the on-call doc. She was very nice, and suggested started the Amicar again, and also calling the ENT, and having them schedule an appt as soon as possible.
So I called the ENT's office, and they wanted us to go to the ER ASAP as they thought there had been too many bloody noses, too many days, and too close to the surgery date to eliminate the risk of him bleeding from his adenoids. So we travelled into Children's. We never even sat in the waiting room, they took us in immediately. They were thorough and kind. They were absolutely wonderful.
So they actually put a camera up Sam's nose and into his throat, and got a really good look at the surgical site. They determined that the incision sites were all healing very well. There was some blood at the adenoids but they believe it is just trickling down his throat from his nose. They placed a medication saturated gauze up his nose, that was supposed to help him clot. They then packed his nose and let us leave, although we have to follow up with hematology in the morning.

Bleeding continues

Well we have just made it through our third night of the lovely bloody nose game:-( Good thing there is red sheets on the bed:-) We are so thankful that the bleeding is not related to the surgery. However even with moisture, vaseline etc the nose bleeds are continuing to occur. PCP did blood work on day one of this to make sure he had a good amount of platelets. His platelet count was fine, but seeing how it has never been the number of platelets he has, but is actually how they are functioning I am not sure if this is useful information. He was not anemic the other day, so that is also an answer to prayers. Waiting for a call back from hematologist to see what the next course of action should be.

Bleeding

Ugggh! Thought we were past the bleeding risk, and prayerfully we are. However Sam has had two bloody noses in the wee hours of this morning. After two weeks (we are two weeks and two days) bleeding is much less common. I called the ORL and they said that I could bring him in to their ER or to our pediatrician. I am waiting for the office to call to bring him in. Essentially we are going to be looking for a clot in the back of his throat. And if there is I don't know what the plan will be...except that we will be going back to Boston. I know God is in control, but right now I am very nervous. Please pray for Sammy today

I Kings 8:28
Yet give attention to your servant's prayer and his plea for mercy, O LORD my God. Hear the cry and the prayer that your servant is praying in your presence this day.

Faith like a child

I am so often reminded by my children how amazing our God is and how we need to learn to trust Him always. Today the weather was TERRIBLE, we had a snow storm, and although there wasn't much accumulation, there was also some sleet and icing going on. Anyways I was supposed to have a doctors appointment today for Workman's comp. I called the office to see if I could reschedule due to the weather. The office staff very rudely informed me that if I didn't come that I was a "No call no show" and that my workman's comp could be terminated! She said that I had to call my workman's comp insurance adjuster directly adn that she would have to reschedule the appointment. Of course she had taken the day off. Long story short, after a lot of frustration and phone calls and run around I was able to reschedule the appointment for thursday.
Meanwhile my son who has a wonderful inspiring faith, says to me "Mommy can we go to my friends' house? I know it's dangerous but God will get us there safe!" It is so wonderful to see his little heart blossoming with love for our Saviour, and faith that God is our protector:-)

Matthew 17:20 (New Living Translation)
"You don't have enough faith," Jesus told them. "I tell you the truth, if you had faith even as small as a mustard seed, you could say to this mountain, 'Move from here to there,' and it would move. Nothing would be impossible."

Two weeks and counting!

It has been a rough two weeks, but I am so thankful to say that God has brought us through with flying colors. Sammy is doing well. He is drinking very well now, and I thankfully have no concerns with his hydration status. Food is still a bit of an issue, but he has STOPPED losing weight! He is back to 34lbs and hopefully I can fatten him up. He is playing and not quite as irritable.
And although he definitely had some apnea last week, last night he DIDN'T!!! They have said that it could take a full four to six weeks to know whether the apnea will be completely eliminated. But for now it is looking positive. They said we would need to repeat the sleep study probably so that I am sure is something we will be scheduling soon. We have pulmonology and immunolgy in the next two weeks. And then GI and hematology in february. ALWAYS something!
I had my follow up for my back today. I had gotten so anxious just prior to Sam's surgery that they were going to give my job away, or say that I had to come back full time the day of his surgery. But as always God prevailed, and everything was put on hold. Today I went and they are going to continue to the partial shifts, as well as the no lifting for another month. I am still awaiting an appointment with the back specialist but I am not sure when that will be
When Sam had his surgery my wonderful friend Meg came with me. I truly don't believe that I could have made it through that day without her. I was a mess, and she was truly God's hand extended to comfort me. She was so thoughtful and brought along her I-pod with some beautiful inspirational songs on it. I was so deeply touched by one of the songs, but sadly could not find it to share with you on YouTube. If you google "How would I know by Kathy Troccoli" it will take you to her site and you can listen. And I highly recommend that you do. THis song has spoken so much to me, the lyrics are below....
"If it wasn't for the times that I was down
if it wasn't for the times that I was bound
for all the times that I wondered how I would ever make it through
all the times that I couldn't see my way and I had to turn to You

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs
Lord I appreciate the hard times otherwise how would I know

I remember all the times I had to cry
and at the time all I could do was wonder why
Why would a God so kind and loving
allow me to go through all this pain
if I could see into the future
then I would know the joy I'd gain

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs
Lord I appreciate the hard times otherwise how would I know

How would I know that you could make a way out of no way
How would I know if I never had a need
Brother I know what your goin through
Sister I know cause I've been in your shoes
But I can truly say that I know what God can do

How would I know you could deliver
How would I know you could set free
if there had never been a battle
How would I know the victory
How would I know you could be faithful
to meet all of my needs

Lord I appreciate the hard times otherwise how would I know

HOME!!!

Home again home again jiggity jig!!!

We are HOME
I am THANKFUL
We are BLESSED
We are SNUGGLING
Our family is TOGETHER

Write more tomorrow

Day 11

Playtime with Uncle Bud! He is looking pretty pale today:-(



We thankfully made it safe and sound to my aunt and uncles last night. The driving was a little nerve racking but God protected us and here we are. Sammy had an ok day today, it seems as though he rallies in order to be able to play, but then turns around and is pretty wiped out and crabby. Eating is continuing to be a huge challenge.
His night last night was pretty awful. I did end up calling the doctors office this morning. The nurse was really concerned and recommended that I take him into the ER to get him evaluated. She then proceeded to warn me how long of a visit it woudl be. She said that she thought he was dehydrated. Then my nurse brain kicked in, I knew that he wasn't dehydrated enough to warrent IV fluids, and therefore we would sit in the ER for who knows how long, exposing him to who knows what! I told the nurse that I really just wanted someone in the office to see him, but she said it sounded more as though the ER should. I decided against the ER with the thought that if things got worse I would bring him in. Thankfully they didn't get worse!
I got a whole glass of milk into him this morning and he had some soup as well. Keeping him nourished and hydrated is a huge challenge. I am so thankful that I have been staying with people who love him too and who are just as invested in getting him better. This is certainly a full time job!
He is just loving playing with Uncle Bud:-)

Recovery Day 10

I can't believe it has been ten days!!! I am so thankful to have ten days behind us towards him being better. Unfortunately we are in another high risk of bleeding phase of the recovery. From day 10-12 is another high risk of bleeding, and with his bleeding disorder we are even more at risk. I know that God will continue to see us through this recovery and that in Him all will be ok.
He slept pretty well last night, he only woke up once. Today his appetite is TERRIBLE! He has lost so much weight I am very concerned. I wish I could lose weight like him (instead of him). He is now complaining when he sits at a kitchen chair that it hurts his back, I am sure it is because there is nothing covering his ribs/spine except the stretched skin:-( Please pray that we can get him eating again so he can put on some weight and feel better. When this whole thing started he was 38 and a half pounds and he is down to 32!!! Six pounds is a lot when you were already very thin.
We ended up getting 26inches of snow!!! It is crazy out there, I will be leaving later today to go to my aunt and uncles, just a town over. I am a little nervous to venture out in this weather though....

Chugging along towards HEALTHINESS

We are chugging along with this recovery. It continues to fluctuate, between I think he is starting to do better to I think he is worse. I didn't call the doctors office today so I guess that is a little better right? I think he was up twice last night. His throat is still pretty unbelievable. I still can't get over the mess that it is in there. Even my mother, who is also a nurse was pretty shocked. Poor little pumpkin. We are supposed to get a big snow storm tonight. Up to 20inches or so. Praying that tonight won't be the night that we need to go to the hospital, or any night for that matter!
The pictures are from the last few days that I didn't have a chance to post...

These are from sunday when Daddy and Sophia came to visit. It was so nice to spend time together as a family. It felt like it had been so long.

The recovery process....STINKS!!!!

Sunday was a good day for Sam. Matt and Sophia came to visit which was awesome. It was so nice to actually be a family again. It wasn't too long before the kids were arguing and we were having to referee them. It felt so comfortable:-) I miss being a family and having us all together. Don't get me wrong I am loving spending the one on one time with Sam, and having the time to spend in the evening with my best friend, but I am a wife and mom and I miss being JUST that right now:-)
Monday my parents came to visit which was really nice too. They commented about how thin Sam is, and I guess I hadn't really noticed. I have been complaining recently at the last few doctors appointments that he had been losing weight but I had been reassured that he was ok. But after my parents left I put him on the scale, he has lost almost five and a half pounds! I know that doesn't seem like a lot but he was really thin to begin with, we can see all his ribs, when he sits on my lap he feels frail and boney.:-( Unfortunately this weight loss is probably going to continue for another week or so. He is now down to 32lb and is four years old!!!
Monday evening and night Sam got a little irritable before bed, he woke up twice last night in terrible pain. There was nothing I could do for him to help. I was praying, rocking him, singing, but he was just hurting too bad to notice. I called the doctors office, and they said that increased pain at this stage is completely normal. I am not sure if I agree but I am going to wait another day and see. The poor kid is so irritable. It just seems to me that if plain tylenol was able to manage his pain all last week when we had the surgery, why after a week is it not able to cut it anymore? Ugggghhhhh!!!!!!!!!!
Please pray for my boy tonight. That he is comfortable and pain free, that he can sleep well and feel better tomorrow. And also (the nurses informed me that day 10-14 are the biggest bleeding risks after the first 24hrs) that there will continue to be no bleeding. Thanks!!!

Post-op Day 6

Coolest puzzle ever! Auntie Tracy and Uncle Tim and their kids got Sam this awesome dinosaur puzzle for Christmas. We have done it several times each day.


This is Chantal and Andrew's dog "Rake". He is so sweet! It is fun having a dog


Sammy has been playing "Go Diego Go" on my computor


Sammy and Auntie Chantal built a card castle


Sam had a terrible night last night. I was convinced that I had made the wrong decision in not bringing him to the ER. This morning he seemed to have much more difficulty swallowing then he had had previously. Chantal and I made the mistake of looking in his throat. NOT PRETTY!!! We both were completely grossed out. I don't ever recommend looking in someone's throat that has had this surgery! It looks like pus is coating his entire throat and uvula, with scattered bits of green infectious looking material. IT is DISGUSTING!!!! So I of course called the on-call doctor again, and he kind of chuckled. Stating that they tell parents not to look in the throat because it looks so awful, but that what I was describing was completely normal.
His spirits/activity level got better throughout the day. But eating has been almost non-existent. I have been physically forcing him to drink, but I am sure he hasn't had quite enough fluids today. Adn then tonight he finally ASKED and WANTED to eat something. He wanted ice cream:-) And kept wanting more and more. So guess how much he ate? SIX SCOOPS!!!!:-) That will get him so calories.
Thanks for your continued prayers. I would also like for you to pray for my sister's baby Darius, who is now one month old. They are not exactly sure what is going on with him. But he is currently at Children's Hospital in Boston. They are doing lots of testing trying to figure out why he is anemic, has a distended abdomen, is intermittently jaundiced, and has had intermittent vomiting and now is having trouble stooling. Please keep him, his mother Doreen, and all the doctors caring for him in your prayers.

Post-op Day 5

What a week it has been! I am so thankful that God has brought us through this week and so blessed that we are no longer in the hospital. I wish that we could be home as a family and oh how I miss Miss Sophia snuggle time. But we have had a good week. God has protected all of us. It has been tough, but prayers have been answered repeatedly.
Today I am worried as Sam is acting worse today than yesterday. He is eating fair, and drinking not enough. He may be getting sick or something I am not quite sure. Please continue to pray for him as he continues to recover.
I got to see Sophia today. It was so wonderful to see her, but it was terrible when she left. I just feel so sad for her and for myself. The poor girl gets carted off often because of what is going on with Sam, and although we have wonderful family and friends caring for her, it is not the same as mommy and daddy. Please say prayers for her as well.
I got off the phone with my mother a little while ago, and she has said that she is taking my nephew Darius up the hospital. He is a month old now. But last night he started vomiting and today he is continuing to vomit and is lethargic. So please pray for him as well as his mom Doreen. Thank you!!!
God bless!! I will try to post some pics tonight:-)

Released!!!

****UPDATED POST*** with pics
Paula and Sophia came around lunch time. I couldn't stop myself from smothering her with kisses. It was so wonderful to see her. I feel so guilty not taking care of her right now. It was so good to have her here and to cuddle and kiss her. To feed her and take care of her. It was terrible when she left:-(
While they were here Sammy started to get tired, I didn't think too much of it, but as the afternoon wore on I started to get more concerned. I eventually calleed the on-call surgeon (who thankfully was aware of Sam already) and told him what was going on. He said we could bring him to the ER but that there wasn't much he could tell me over the phone. So now we will just go through tonight and see how he does....
Sophia inhaling a pancake:-)




Sammy having some snuggling time with Auntie Paula

They let Sam leave Children's late yesterday! I am so thankful. Of course we do have to stay close by for another week, but just being outside of the hospital is so wonderful. He seems to be ok. We are at my best friends house and he drank about 7ounces of milk last night! It was great. He is also sipping on apple juice and tolerated all of his medicine since we have been here.
I can't get him to eat anything this mornign but at least he is drinking well. He slept fairly well. He woke up twice crying a little due to pain. But quickly fell back to sleep and slept until after nine!!!
I am missing Sophia so much! It is so hard to be away from my baby. I know she has been well cared for but there is nothing like snuggling and kissing her myself. My friend Paula is bringing her to see us today and I can't wait.:-)
I have more pictures to post and will do that a bit later. AGain thank you for all your prayers! Please continue them as he is still at an increased risk of bleeding throughout the next 10 days or so.

Surgery Day 4

Auntie Chantal came to visit and spoil us (AGAIN)

Sam did much better last night! Praise God!!! He vomited his evening dose of medications, but he tolerated a small amount of food, and few ounces of liquid. He slept really well.
I have been playing a game with him today, trying to get him to drink a lot of fluid. THey want him to have the equivalent of what it would take to keep a two to four year old hydrated, even though they think it should be more. They feel as though if he gets the required 24ounces in a 24 hour period that he will be safe to get out of here. So I have been lining up medicine cups (they each hold one ounce) and playing a racing game to see who can drink the fastest. It takes him like five minutes or more to swallow the whole ounce but he is working on it, and we are making progress.
There is discussion of discharge this afternoon or evening if I can get enough fluid into him. THey also decided that the amicar that he is on (to help him clot) could be decreased, as this may cause nausea. So they cut the dose in half!!! I am not quite sure how I feel about this yet, as I feel like if they cut that medication in half he is at a higher risk to bleed. But on the other hand I don't want him vomiting either, but they can always correct vomiting with nausea medicine and IV fluids, but bleeding would be more complicated....
Praying!!!

Surgery Day 3

Can you say LOTS of medicine every 4-6hrs around the clock?!?!? Poor kid has never had problems taking medicine but now is another story

Sammy is doing pretty terrible today. He started vomiting last night and they did end up restarting his IV fluids. He vomited each time he took his medications. They ended up switching some to IV instead of oral. He has slept a good portion of today.
He has a sore on his mouth (I was told it was probably a burn from the instument they used during the surgery) that is really starting to bother him today. We are constantly making him stop touching and picking at it. They prescribed an antibiotic ointment so hopefully it will get better quickly.
There had been some discussion about a possible discharge today if he drank and did well with his oral intake, but now that the vomiting is occuring it might even rule out tomorrow too.
The good thing is that he hasn't had any bleeding. The medication to help him clot has been working well and I am so thankful. Praying for a good night tonight and an even better day tomorrow! Thanks for your prayers

Surgery Day 2

We transferred out to a regular floor today. Sam is still being constanly monitored as far as vital signs and oxygen saturation. He currently has no IV fluids running but there is some discussion whether these will be re-started due to his poor drinking/eating today. He has peed a tiny amount since before surgery yesterday.
He seemed to be much more uncomfortable this morning than he was yesterday. It was pretty tough getting him to take any of his medications. He actually even spit some of them out. We have been trying to get him to drink all day but he just isn't having any of it right now. Praying that he starts to drink again.
We had some wonderful visitors today. Our favorite Child Life Specialist came this morning prior to leaving ICU. He was sleeping and didn't get to visit with her but I did. She was so sweet bringing him balloons, and a little kids laptop and a cute stuffed dog.
We also had a "music therapist" come see Sam today. She just came in and played her guitar and sang for Sam. He got to play the drum and cymbal during this time, and he did well although he was so so tired still

Success!!!

Sam came through his surgery with flying colors! He did really well. They pre-medicated him with medications that would help him clot appropriately and these medications worked really well. He had no bleeding that was out of the ordinary!!! He was laughing as he went away from us due the medications they gave him:-) It was nice to not have to see his eyes roll back in his head and have him go limp in my arms, but I was anxious about not being there for him while he was awake.
The doctor was very surprised to find that Sam's tonsil was "green and mushy." which apparently he hasn't seen ever before! Yes again, Sam has done something another doctor at Children's Hospital hasn't seen!:-) But at least that green mushy tonsil is no longer inside of him. The doctor said that they were much bigger than they expected and they looked like they were chronically infected. So prayerfully this will improve his frequent respiratory illnesses and the apnea.
We were supposed to spend the night in ICU, and had a wonderful nurse. Sam was pretty much out of it for the whole night. He denied pain for the most part. And was loving eating orange and jolly rancher popsicles
Thank you all for your prayers for our little miracle boy!!!

Tomorrow...

Tomorrow is the day
The day of the surgery
The day I have been praying for
The day I have been terrified about
The day I have been dreading

Tomorrow is
The day that God's will will prevail
The day that Satan's fight for Sam's health will be defeated
The day that I will rejoice for God's healing
The day Sammy will be able to breathe
The day I will be able to focus on God
The day we will be surrounded by love and prayers
The day that God will reveal Himself in a bigger way
The day that the Lord has made

The surgery is tomorrow afternoon. We will go in early so that he can get IV medication to help his blood function better to help prevent bleeding. I am so blessed to have the prayers of so many surrounding us, and also to have a support system of people coming into Boston, taking care of Sophia, and praying. Thank you to all of you! We couldn't get through this without all of you!!!

On New Years Eve we got to have Darius over to watch. Sam absolutely loves him! He wanted to hold him constantly. Sophia on the other hand, was jealous and didn't want me to hold him at all.







Phillipians 4:6 Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.