Saturday, January 30, 2010

So what we have learned...

is essentially nothing! The GI doc gave up his lunch break to see us early so that we wouldn' be waiting all day. So as soon as Sam was done with his IVIG we went right over and saw Dr R. He was so nice and kind to Sam. I am so thankful for that and for his willingness to see us today. He essentially wanted to make sure there were no tears or anything in Sam's bottom that could be causing the bleeding. There weren't. He said he could see little flecks of blood everywhere though. He truly believes that the problem is hematology related, and hematology just doesn't know. I spoke with his hematologist, and she essentially said that there is a strong possibility that it is a platelet problem, but as of right now they don't have the exact test to determine exactly what it is. So she is essentially saying that there isn't really anything they can do until he is in a crisis and then they could treat him. Apparently there is a test being developed to test more specific platelet orpboleplatelet problems, and Sam's blood will be tested when that becomes unsolvable. We follow up with her in two weeks, she is repeating a lot of the blood work, to see if anything is better worse or the same.

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