Sunday, January 10, 2010

Hematology update FINALLY

Well I finally heard back from the hematologist. The results I must admit are really annoying. It is quite frustrating when a very brilliant doctor from Children's Hospital Boston says "Well the mystery of Sammy continues, I am sorry!" Ugghhh!!! So essentially what has happened is they did multiple multiple tests when we went in. And her exact comment was "WEll the results are kind of confusing." So not what you want to hear when they are talking about your kid.
So essentially many of the tests came back perfectly normal. PRAISE GOD!!! Then there were a couple of platelet tests that did not come back normal. But the confusing part, is that where one test was abnormal they would have expected another to be abnormal too and it wasn't. So apparently there is another big wig hematologist who is developing a new test to test platelets in a different way, so when that test is fully developed I guess Sammy is going to be a part of the initial testing with his blood.
So now what she said is "Well there is a problem with his platelets but we don't really know what." She was very apologetic and nice, and I could tell that she really wished that she could have been more helpful. But for now it is what it is. There is one more test that is still pending, but I guess that will take a little while longer. We have another appointment in a month, at that appointment we will develope a plan as far as what needs to be lined up for him if something happens with bleeding:-(
It is all so very frustrating. I hate saying "Yeah there is something wrong but I don't know what, I don't know how to help, I don't know how to treat it or make it better. I don't know what the triggers are, or what helps or prevents it." God knows this and I am so thankful that He is on our side. IF GOD IS FOR US, WHO CAN BE AGAINST US?!?!?

1 comment:

tiff(threeringcircus) said...

So frustrating when you cannot get a proper answer.
Hugs to both of you.
Thank you for that lovely comment on my blog too. Appreciated more than you know.