Saturday, February 20, 2010
Show us your life
Over at www.kellyskornerblog.com, Kelly started a ministry, encouragment link. So if you are over from Kelly's blog, welcome. I hope that here you will find some solace in knowing that you are not alone. That if you are caring for a chronically ill child that you know that God is walking right beside you. That there can be joy in the trial and that HIS JOY COMES IN THE MORNING!!!
This is our story (the brief version8) After a complication filled pregnancy Samuel was born emergently at 35wks gestation and was IUGR (intrauterine growth restrition) and SGA (small for gestation age) He spent some time in the NICU, but then came home. And then for the rest of this year he was constantly ill and ended up being hospitalized multiple times. At 13months he was diagnosed with Hypogammaglobinemia (IgG-1 and IgG-2 deficient) essential this means that his immune system doesn't work. So we now get transfusions ever 3wks. In the last two years we are dealing with new problems, bleeding issues- bloody stools, bloody noses, and abnormal platelets. And more recently problems keeping his temperature normal, and some possible high blood pressure. But through it all, he is such an amazing little boy and I am so blessed to be his mom. Join us on our journey, follow Sammy's story to see what God has in store for him, and please let us know you are here:-)
Labels:
bleeding,
blood pressure,
hypothermia,
IgG levels,
immunology,
premature
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