Uggh so annoyed. Yesterday we went to see our PCP, after waiting two days to hear back from the GI doctor, regarding Sam's watery stools and refusal to eat. Those are his symptoms, explosive watery stools, belly pain, and he won't eat. You know what the doctor said to me after I waited until yesterday for him to return my call? He said "you should take him to see his primary care doctor maybe he has strep throat!" Are you kidding? Where does diarrhea cause a sore strep throat?!?!
So anyways we went in and saw Dr V yesterday. Sam's weight was down six pounds on her scale since december. I knew that he was losing weight but I had no idea how bad it was. He looked ok to Dr V. She said he was "fairly hydrated", and that I needed to continue to push fluids. He did have some swollen lymph nodes so we know that there is definitely an illness going on, but she wasn't able to find anything, ears throat, sinus' etc. So now we are just praying that he will get better, this diarrhea will go away, and that he will start eating again.
We are also trying to get a second opion through Mass General Coordinated Care clinic, which apparently is a whole group of specialists who meet together as a team to determine your care. So if you see GI, hematology, immunology, and endocrinology like Sam, those four specialists would have meetings to discuss your child and determine what the best plan was. And then when you go into appointments they are all there, so you don't have several separate appointments. So we are hoping to get in there very soon. Please pray that God opens the doors for this to happen. For now enjoy this super old pic of my handsome boy. I just haven't taken any recent this week, and I am just plain old worn out. This week has really been tough for me, and I have been struggling with feeling alone. But isn't he just gorgeous?