Today we had our appointment at Children's. It went really well. They were fantastic as ever. The Child Life Specialist was there to play with Sam, and he just adores her, to the point where this mornign while we were at home he kept telling me that he was sick and needed to go to CHildren's. I guess that is a good thing that he really enjoys being there, IVs and all. The not good thing about this trip is that we noticed that his weight is trending downwards. His weight today was 32lb 2oz. I am not sure what this means but it is certainly alarming and is something that they will be looking into. The other weird thing about today was that he had some elevated blood pressures. One the diastolic was 94 and the repeat was 83!!! Crazy for a kid his age. Again not sure what this means, but it is something that they will watch.
He played Dr Sam today. Anyone watch the show Gray's Anatomy? Someone called him Dr Weber today:-) He was so funny with this doll, explaining what he was doing and why to her. Telling her that she was so brave and that he was proud of her. He is just such a sweet little boy, and I am so blessed to be able to call him my son.
We head back into Children's on monday to see hematology, so that should be interesting...
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