Memorial Day and a Baby Update

Well I got discharged from the hospital, with instructions to do as little as possible, until I felt better. I certainly feel better today than I did on friday but about the same that I felt on saturday and sunday. Maybe not quite so tired. I guess that that is a good sign. Since I don't feel worse, then it probably isn't progressing HELLP syndrome.
My brother and his wife took the kids to the Memorial Day parade today and the kids had a blast. I am so thankful that they still got to go even though I couldn't take them. We just essentially spent the whole afternoon and evening at my parents today. I sat in a lounge chair in the shade and watched the kiddos playing. It was a perfect day with lots of good food, family and friends. I am so thankful that we live in an age where people love and support our military and the sacrifices that they make for us!!!

PRAYERS please

Goodness, this is going to be a quick info filled update. Currently I am sitting in the hospital on bedrest. I called the hospital yesterday stating that I was having diarrhea and vomting and that I had a bad headache. They had me come in and did labs mostly just to appease me. But the labs came back bad, and then I had a big discussion with the doctor about how the baby isn't viable yet, and if I am already getting PRe-eclampsia or HELLP, the only resolution is to terminate this pregnancy. We have notified our prayer warriors and people have been praying. I ask that you do too. This mornign my liver tests were better than last night, but still not normal. And my platelet counts had dropped by about 30 points, but are still within the normal range. So at this point they are thinking that it probably isn't HELLP syndrome, but we will continue to watch the labs. Please be praying for this little miracle baby, and for our whole family. For wisdom for the doctors and for us. And for this baby to defy all the odds, and at the end of this, for not one person to deny how amazing God is:-)

Garden

It feels like we haven't seen the sun in a month, but all this rain certainly is helping the garden to grow. We have pole beans, sugar snap peas, tomatoes, zucchini and summer squash plants already growing. And someone from Matt's work gave us a Russian tomato plant, I guess he brought over seeds from Russia and they are now growing the plants. I am excited to see what the difference between their tomatoes and ours are. When there is a break in the rain I will take some pictures:-)
We are all doing well. Sammy has his kindergarden screening this week. It is so hard for me to believe that my baby is growing up and will be in kindergarden in the fall. Sophia is such a talker, we have these amazing conversations with her. We are awaiting a referral to go seea rheumatologist to see if they can figure out the cause of her pain, we are also seeing the head of orthopedics at Boston Children's next week. So please be praying about that.
I am feeling ok. I did have the UTI last week which was absolutely terrible. I can't believe I am 20 weeks along with Baby Surprise. As we get further along I am starting to get nervous but am praying that this pregnancy is the one that has no ambulance trips, no complications, no NICUs, no crisis' situations, no Magnesium, no pre-term labor and need for steroids, no pre-eclampsia or HELLP syndrome. I would be just beyond thrilled to go full term this time, be able to stay home until the end and go into labor like a normal person:-) I have actually started another blog as well. The new one is www.weberfamilylife2.blogspot.com
I was thinking that I would share this new blog once I announced I was pregnant but I haven't shared it until today. At some point I will probably transition over to the other one. Come follow my new one please:-) Leave a comment and let me know you came

Gardening

WE have planted our garden in the last week. The kids were so excited about it, talking about it for days and days. When we finally got to the actually planting part they were interested for about five minutes TOTAL!!! Sam planted a few watermelon seeds and Sophia planted nothing. She just kept rearranging seed packets. We planted: Sweet corn, broccoli, zucchini, summer squash, pole beans, peas, cherry tomatos, beef steak tomatos, watermelon and one more thing that I can't remember:-)

Digging Up Worms

We are so excited to be planting a garden this year. I CANNOT wait to have fresh veggies right from the garden. So delicious. I have been reading another blog (www.4tunate.net) and they had been talking about planting a "Square Foot" garden. So that is what we are attempting to do. It essentially is a way of planting that makes the most efficient use of your space. So needless to say Daddy and the kids have been working out there a lot the last few days. They got a kick out of all the worms they were finding in the dirt:-)

Spring adventures

The kids and I have been out almost every day this past week on a bike ride. The kids have been riding their bikes and I have been walking beside them. THey are having so much fun. We are so blessed to live in an area where there are many bike paths and areas to get out and enjoy the enviroment. Soph has intermittently been complaining more often about her legs hurting. I am noticing it more and more. We get outside and she starts complaining shortly after she is very active. Poor kid, I am not exactly sure what to do at this point, since the orthopedic doctor wants to wait until the fall to determine if this is a real problem or not.

Easter eggs

The kids had a blast at Meme's decorating eggs and then having an easter egg hunt. My favorite part of Easter this year, was realizing that my kids KNOW what easter is all about. That without a doubt that they know that Jesus died and rose from the dead, to forgive us and make a way for us to spend eternity with Him. What an awesome priviledge it is to watch God's children learn about His love for us:-)

Rejoicing!!!
I Corinthians 15:4 He was buried, and he was raised from the dead on the third day, just as the Scriptures said.

Easter pics (FINALLY)

Goodness it seems as though lately I just can't keep up with this blog. Now that the warm weather is here we have been running what feels like all day every day. WE are so loving the sunshine and warm weather, I am starting to come out of the constant nausea stage with this pregnancy, so we are chomping at the bit to get out and enjoy the beautiful creation that God has given to us.
Easter this year was fun. My mom decided that it would be fun to have everyone dressed in purple. And so all of us (sadly minus DJ and Lyndsea though) wore purple. We actually got some family pics too:-)

New Bikes

The kiddos got new big kid

bikes and are so excited about them. Of course since we have gotten them it has mostly been rainy, but we are hoping for some more sunshine this week:-)
They both thought that attempting to ride up the steps was a good idea. I am okay with this, as long as they don't attempt to ride DOWN THE STAIRS:-)

Sophia ortho update and the DENTIST

Goodness just realized that I had forgotten to write about Sophia's appointment with the orthopedic doctor. Essentially it was an extremely frustrating appointment. He said that her hips turn in too much (which he said should resolve by age eight) and that the lower part of her legs turn out too much (again this SHOULD resolve by ag

e 4). He was not at all concerned about these issues. The only thing that he was concerned about was that she has been complaining of pain, and he said that that wasn't normal for a three year old. I had mentioned how she cries in the morning and has a lot of difficulty with the stairs and cries that her legs hurt, he said that this was behavioral, which REALLY REALLY bothered me!!! I have a 3 year old who has been a climber since before she could walk, who has never had an issue with stairs, who can skip and hop. Who is super active all the time, and then over the course of this winter has developed pain, difficulty with stairs, increased stumbling and it is BEHAVIORAL??? Really?!?!? Anyways a little annoyed. He essentially said that if she continues to complain then we should call him back and they will do an MRI and bone scan. But he thinks that a lot of it is behavorial in one sentence, and in the next he is really concerned about her pain....So we shall see...
In other news she had her first official trip to the dentist last week as well. She was very excited at first but then got anxious for a couple seconds until the girl actually started counting and checking her teeth, then she would randomly laugh while she was sitting there.:-)

I stink at this....

Officially pregnancy and I are not getting along. I have been feelingn like I was probably dehydrated for a couple of weeks, but nothing absolutely terrible and the OB's didn't seem at all concerned about it. Well after our marathon day in Boston on friday, I was feeling pretty terrible that night. I couldn'tkeep anything down. I contacted my doctor and she said she would meet me in the morning to give me IV fluids. They had a HORRIBLE time getting the IV in, it took them 9 attempts!!! They were going to send me up to the hospital but I begged them to just do it there. So thankfully they finally got the IV in. I needed 3 liters of fluid before I could even pee.
By their scale in the office I have lost 24 pounds in the last two months! By my scale at home I have lost 18lb. I just can't tolerate much in the way of food when I am pregnant. It makes me so mad. I get these crazy cravings for something that I know is going to taste absolutely fabulous. And then it comes right back up:-( YUCK!!! I am feeling like this time hasn't been as bas as with Sam and Sophia. I was doing IV fluids like every few days for weeks with them. Thankfully I am fifteen weeks now and this is hopefully coming to the end. With both Sam and Soph this severe nausea and vomiting stopped between 17 and 18 weeks. SO hopefully I am almost there.
I look like a bruised pin cushion! But thankfully I feel a little better and have some more energy today. I unfortunately didn't go to church as I am still feeling kind of crummy. But am hopeful that I can really recup some energy today.

Crazy friday

Tomorrow is certainly going to be an extra busy day. We need to be at the hospital for Sam's IVIG for 07:30. My friend Chris is taking Soph first thing in the morning so that she doesn't have to see them putting Sam's IV in. After his IVIG another friend will take Sam for me as Sophia and I have to go see an orthopedic doctor at Children's. IT certainly is going to be busy. I am anxious to hear what the doctors have to say about Sophia and to see what if anything they can do to help her. Please pray for a good complication free day.

"You hurt my feelings!!!"

So today Sophia was being very naughty. I turned around to her and said "Sophia Grace Weber you need to be quiet and stop your whining. There will be only indoor quiet voices in my van or you will have a time out when we get home."
She immediately starting crying. And continued to cry for a few minutes. She then said "Mommy you hurt my feelings so bad! God doesn't like it when you hurt peoples feelings." Ugghhh, I am so torn with this one, on the one hand she was naughty and does need to be reprimanded, however I also agree that God doesn't like us to be mean and hurt people. I am so thankful that my speaking to my children about our loving God is sticking with them. They have memorized a few bible verses which is so awesome to me. Their favorite right now is "Never stop praying" I Thessalonians 5:17

GI update

So our GI appointment went relatively well. He was pretty happy with Sam's weight although also concerned with the continued belly pain. He is now up to 38lbs!!! We increased his periactin dose, for two weeks, and at the end of the two weeks if he isn't better then I am to call his immunologist to see if we can stop the singulair. Apparently singulair has been linked to some belly pain in the past. And then after two weeks off the singulair then we will then move on to a new GI med to see if that helps resolve this crazy stomach pain.
I can't believe he will be five soon! I have been filling out all the paperwork to get him into kindergarden in the fall! My baby is growing up:-) He is such a joy and such an inspiration to me. With all his medical problems/challenges, with all the scares that we have had with him since pregnancy, I feel so blessed to be his mom. God has given us such a tremendous blessing in Sam (and Sophia as well). I feel like because we have had so much struggle with him that I have appreciated and enjoyed each and every moment with him moreso than if he was healthy. It is a reminder that we are never promised tomorrow, but more so than that is that our God is an awesome amazing all powerful God, and that His plan for us is greater than we can even imagine.
I am just in the place of thankfulness, thankful for the challenges we have had because htey have made me a better mom, and a better person. I have become more compassionate and understanding. I wouldn't have the sam compassion if I didn't have this chronically ill kiddo to love. Just thankful:-)

A new week

It is the middle of the night and I am at work wishing I was home in my nice warm bed:-( I am so incredibly tired. This pregnancy has seemed to really be exhausting for me. But such is life. I am thankful that God has chosen to bless us with number 3:-) Sam and I will be going into Boston today for a GI follow up. I think this appointment will go well as Sam has been doing well since we started that new med last month. He still has had some funky stools but he may just be a kiddo that does that. Oh well:-)
Have a wonderful day:-)