Thursday, September 10, 2009
IVIG here we come????
Well let's see, we are still pooping blood, running fevers again, and generally pretty irritable. He has some good moments when he is his normal self, but it has been a rough weeek. His primary thinks we should definitely go back to the IVIG, which I was like " Oh yeah another year would be great and then we can get him through the winter and see how he does next year" To which she replied that this probably wouldn't be the case, that we would be looking at several years before we trialed him off again. Totally not what I wanted to hear, but I understand it.
I took him to the beack with my brother this week just to try and do something fun. We were there about an hour before he said that he was too sick and wanted to go home. Sophia loved it! And she just rolled around in the sand and had a blast. Sam asked to stop for ice cream on the way home, which we did. He took a few licks and then he told me that he was too sick to eat it:-(