Sam is sick:-(

His doctor made a comment about a week ago about how long it had been since he had had an upper respiratory infection (the beginning of january), and we were just so thrilled that he has been doing so well. He had his IVIG last week so even though he was starting to be sniffley I was praying that the IVIG would fight it off. But it would appear that it hasn't. We've got a very congested little guy on our hands. The mucous is thick and green but I am praying we can get by without antibiotics.
Looking forward to a sunday of praise:-)

Psalm 136:2 Give thanks to the God of gods. His love endures forever

Weekend is HERE!

Goodness it feels like it was an incredibly long week. I am thankful for the weekend and to not have too many things we have to do. Kids are doing well although Sam is pretty fussy, and I always start wondering if he is coming down with something when he starts acting this way. He had IVIG this week so hopefully this is just crabby kid week.
WE had the yuckiest storm yesterday. It snowed all morning then switched over to rain then back to snow. It was a big slushy gross mess. I am so ready for the winter to be over and some warm sunshine and green grass....
Hope you have a fabulous weekend!

Cousins:-)

We got to have Darius over for the night last night. Sam absolutely loves him. It is so awesome to see them together. Both Sam and Sophia have been saying things like "I have a new baby brother and sister." to which everyone is completely suprised/confused. But they have claimed Darius and Danay as their own siblings. It is awesome to see how compassionate and protective Sam is of babies. When Sophia was born he was only 20months old so he didn't really understand "the big brother role."

Magic Wings

Last weekend Sophia and I went to "Magic Wings", a butterfly place in western massachusetts. It was amazing. There were hundreds and hundreds of butterflies, many different colors, some exotic birds. It was awesome. Sophia and I had a wonderful time, while Matt and Sam went to a Monster Truck show.

IVIG, sickness, and friends

Few busy week as usual. IVIG went fabulously well on sunday evening! They got the IV in on the first try, and everything went so smoothly. He did awesome. And we had great nurses.
Monday Soph was sick again:-( Not sure what is going on with this crazy bug. We had had four days since she had vomited and then she started again. I did hear that that is how it happened with my mom too though. I also was vomiting on monday and a wonderful friend stopped with crackers and gingerale. The kids love gingerale.:-)
Yesterday we didn't do a whole lot. Hung out here, did some cleaning. Denise, Dasanee and Danay came over so the big kids all got to play. Matt's parents came over and watched the kiddos last night so we could go to a bible study. Sam was screaming like crazy when we were trying to leave, we had to peel him off me. It breaks my heart when he does that. It has happened maybe three times in his life so when it does it certainly gets my attention. He had a great time and was fine after we left.
Today we are going to a friend's house so the kids can play and then she is watching them when I go to physical therapy.
Again this week I am so blessed to be surrounded by such wonderful supportive people. They make themselves available and are so helpful and kind and compassionate. I am so incredibly blessed.

IVIG tonight

We are going to attempt IVIG tonight at our local hospital. We have had such bad luck with IV's lately, so I am praying that it goes well. I scheduled it when one of our favorite nurses (and a HUGE talent with IV starts) is on. He is super excited to go see "Miss Chris."
We have had a very busy weekend. Matt and Sam went to see a Monster Truck show yesterday, which Sam raves about, and Sophia and I went to Magic Wings which is this amazing butterfly place with hundreds of butterflies. They fly around and land on you and everything. IT is awesome. Soph seemed fine yesterday AM when we were getting ready to leave, but seemed to feel intermittentely cruddy yesterday, and that has continued to carry over to today. Praying that my sweet girl feels better soon
I will get around to posting pics of our adventures soon....for now I've got bags to pack, supper to make for Soph and Daddy, and some snuggling with my babies. Have a blessed day!!!

2 Corinthians 7:16 I am glad I can have complete confidence in you.

I have a beautiful new niece!!!

I have a new niece that was born today! I am so excited, however I am so so disappointed that I didn't get to see her be born. I unfortunately didn't get the texts/phone call until this morning at six! So sad that I missed it. But oh is she precious! Seeing how my babies are always early and on the scrawny side it was so wonderful to snuggle this baby. I couldn't get over how wonderful she felt in my arms.:-) If only I could grow a baby like that!!
My sister got to the hospital around 1 in the morning and delivered her at 3:24am. She was 8lb11oz and 20inches long!!! A TON of silky black hair

Sick and snuggly

My babies are starting to feel a little better although still pretty wiped out. Sam started with diarrhea, but we are praying that it is resolved quickly. He and Matt are supposed to be going to see a Monster Truck show tomorrow, so I am praying that they are able to go.

Sick:-(

Yesterday was quite a long day. Miss Sophia was pukey and had high fevers that weren't coming down with medication. Sam also developed a fever but thankfully hasn't vomited. He seems to be feeling better today so I am praying that it is over for him. I vomited this morning but it was only once and I have eaten since so I am hoping it was just a little touch of it and now it is better. Sophia is still sick today although she has drank well this morning and hasn't vomited so prayerfully there will be no more vomiting at our house:-)

Fevers and puking

The stomach bug has invaded our house. Please say a prayer for us that it leaves as quickly as it came!

Another great day:-)

Sam is having a wonderful week! I am so thankful to be here and on the other side of all of the surgery, complications and then the belly stuff. God has as usual (AS ALWAYS) brought us through and I am just so so thankful to be here. Sammy is eating fairly well, isn't complaining of pain and is acting perfectly healthy. Awww, smiling!!!!
We are doing so awesome this week. I am just in such a deep appreciation for God's provision for us. Sometimes I get so bogged down in the trials that I forget to be thankful for the blessings. And this week I am remembering:-) Sophia is such a darling and is so smart and animated, she is spunky and determined, loving and loves "snuggly time." What a wonderful feeling to snuggle your baby as they fall asleep, and then to just stare into their faces as they sleep so peacefully.
Matt and I again got to attend a bible study last night and it is great to have some adult time and also be studying and getting closer to God.

Psalm 107:1 OH give thanks to the Lord, for His steadfast love endures forever

Had my eval for PT yesterday. I was hurting just from the evaluation. But I already feel like this time is going to be the time that makes progress and makes things better. THey said that I have some immobility in between several of the vertebrae, and that that is leading to the muscle spasms. So the plan is to start working those verterbrae in order to stimulate the synovial fluid production to lubricate them. So prayerfully that will work.
Kids are doing well. Sammy is feeling well this week. He really enjoyed his Valentine's Day party and is looking forward to several playdates we have planned this week:-) Miss Sophia continues to be so stubborn about going pee on the potty. I am praying that she will just one day start doing it and never look back. We shall see.....

A good weekend

We have had a good weekend. The kids and I had a fun playdate yesterday AM then we had Matt's cousin Joel and his girlfriend Kristen over for the evening. It was a great time. The kids ran Joel and especially Kristen ragged though.
Sam seems to be doing better stomach wise. He has complained intermittently throughout the weekend but nothing consistent and nothing that was too much discomfort for him. Praying that this week brings him even more relief. He has a Valentine's Day party at school tomorrow. He is so excited about it. And mean momma that I am we had a lot of good letter writing this weekend as I made him write all 20 of the kids in his class's names on their invitation:-) He did awesome:-)
Tomorrow I start my "intensive back rehabilitation." I am very curious as to what effect it will have. It was seemingly useless when I did PT before, but I sure would love to have this discomfort out of my life once and for all. We shall see.....

I can do all things through Christ who strengthens me Philipians 4:13

ENT and GI

ENT appointment went really well! The doctor was pleased with how his throat looks and the tubes look great in his ears. They did do a hearing test, and his hearing is FINE!!!! Praise God! So that just means I have a kiddo who I need to retrain to like things quiet:-) He did say that he definitely wants to repeat the sleep study so we will see when that happens. The other interesting thing about this appointment was when we were talking about his tonsils. After the surgery he had stated that one of Sam's tonsils was green and he hadn't ever seen anything like that before. I questioned him about that today to get more information. He said that the particular bacteria that was growing on his tonsil is not one that is typically grown on humans, but because of his immune dysfunction that is why he grew that strange bacteria, but now that it is removed it won't be an issue.
He also really cried that his stomach hurt today after lunch:-( He actually didn't even stand up straight when we got out of the van and was walking hunched over. So I have another call into the GI doctor to see what they think we should do. It sure feels as though you get one situation resolved and then start on another:-(

Psalm 5:1 Give ear to my words, O LORD, consider my meditation.

Off to the doctors

We are off to see Sam's surgeon today. This is just a follow up to the surgeon, but I find myself a little anxious as I feel like his hearing has been affected by the surgery and therefore will be asking for a hearing test today. Praying that they can do one.
Tonight the kids are going with their grandparents for a little while and Matt and I are going out! I am so excited as it feels like we NEVER do anything together anymore. It is so hard to continue to strengthen our relationship when we are so pulled in so many different directions and don't often get to be just the two of us. I am definitely looking forward to tonight. And it is exciting because it is a surprise and I love surprises:-)