I finally spoke with Sam's GI doctor yesterday. The good news is that Sam's esophagus biopsies were "essentially normal." I obviously am wondering what exactly the term essentially means in this case. The stomach biopsies should something called "Chronic Gastritis." Sam doesn't have any of the major causes of this, and so therefore they are not sure what to do with these results. The good thing is that it is not H. Pylori which is a horrible bacteria. Other causes of this would be heavy alcohol intake (he's NEVER had alcohol) and then frequent NSAID usage. This would be things like Motrin or Aspirin, which Sam can't have because of the bleeding disorder. So unfortunately that leaves us with more questions and not many answers. :-( We will follow up in october if not sooner if needed.
Unfortunately today Sammy has spiked a temp initially and now his temp has dropped to 95.7!!! I am praying that we don't have the temperature regulation issues that we had last year. I wish we knew what the cause of that was. I guess we will see how the rest of the weekend goes, and follow up with the doc on monday.
We also got to go see Sammy's friend Keegan today. IT has been quite a while since we have seen him. Sam was absolutely thrilled and they had a great time today. It is so nice for him to be able to spend time with someone who is "like him" with the illnesses and multiple doctors.
1 John 4:7 NIV •
Dear friends, let us love one another, for love comes from God. Everyone who loves has been born of God and knows God.
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