NOT what I expected....

Well Sam's results for the blood work are in. I fully expected to be waiting at least until wednesday. I had just come to accept that he probably had the von Willebrand's disease, and was feeling ok with it. Feeling that it would still be ok, that God was still going to care for him that He knew and would guide the doctors in treating him. Well the tests came back negative! So now essentially what we have is a bleeding problem that they don't know what it is caused by, how to treat it, or what the future holds. So now we know that there is something wrong with his blood, but don't know how to treat it. :-( So now I don't know what the next step is. I am so frustrated, and oddly enough disappointed. I finally was ok with this, and accepted that we would have some new treatment or something, but essentially we have a significant problem without an answer, which is exactly where we were last week. I don't know why I am struggling so with it tonight.
I keep reminding myself that God is with us through this. And that His plan for Sam and for all of us is perfect, that He knows best. I am holding on to Him being the one to see us through this trial. That we will continue to have really amazing doctors (DR V) that will take us down the path that will lead to Sammy being better. God knows, and He knows best! I don't know what that best is but I am trusting that EVERYTHING will be OK!!!