FINALLY, FINALLY, FINALLY I heard from GI!!! I spoke with the GI doctor's nurse and essentially she said that the capsule endoscopy was NORMAL!!!! PRaise God! So essentially what this means is that God has healed him, or that they still just don't have a clue where this bleeding is coming from. The doctors over at MGH talked about a possible AVM but I am not sure what would be the way to diagnose that. He hasn't had any episodes of bleeding lately, so I am trusting God that this part of our lives may be over. The question still remains though does he have an actual bleeding disorder or is the bleeding caused from medication or something?
Last week when we came in to see the immunologist we also got to see Sam's little IVIG buddy Keegan who was in the hospital. Sam was so cute with Keegan, and very concerned. And Keegan treats Sammy like a little brother and is so generous and protective of him. It amazes me that these kids who go through so much medical stuff are so kind and grown up and compassionate. Sam was so comfortable at Children's he just climbed right up next to Keegan, and ate Keegan's supper with him:-) Fast friends thanks to being immunodeficient...
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