Sam had his follow up with the coordinated care clinic at MassGeneral yesterday. It was a good appointment. He is 42inches and 40lbs! He is finally growing well. As nervous as I was about the surgery in January, God really guided the decision and Sam is now thriving. We discussed school concerns and possible port placement. Also the relative long term implications of his medical care. We have a couple follow up next month and hopefully we will then have a pretty good idea of what we are looking at for at least the next year or two.
After that we went to visit my inlaws who are camping. The kids got to swim and play with their cousins. They made ooey gooey s'mores and had a blast. Then poor Sam touched a propane lantern and got second degree burns on his hand. He didn't cry at all, and I didn't realize how bad it was (it was dark) and so I just got a cool pack out of the cooler and put that on it. He didn't cry at all the poor little guy. Please say some prayers for him, that they will heal quickly and there will be no complications.