Just cute pics

So here are some pictures from the last few days. As you can see he is so busy and so cute. (yes I am biased I know) He seems to be doing well. He had another IV IG transfusion this past week and was a little under the weather but is doing great. He had his 15month well baby visit too. He weighs 22lb 9oz, and is in the 40 percentile for his weight. He is 31inches which is in the 50th percentile for height. Not bad for not being on the growth chart several months ago. We are steadily moving up the chart.

It's been a while

Wow I didn't realize how long it had been since I had updated. I guess puking ALL the time makes your brain not work. I am finally starting to feel better, a little any way. I am still puking on average 1-3 times a day, but at least am able to stay hydrated. I have lost a total of 20lbs, who knew getting pregnant would make me lose so much?:) But I think that that is starting to level off as well. I haven't lost any weight in like 3 or 4 days.

We have been busy, Sammy is definitely keeping me on my toes. He is such a love. He had an appt. with immunology last week, and he weighs 23lbs!!! No wonder he feels so big. That puts him almost in the 50th percentile for his weight, not bad considering we weren't on the growth chart until like 6 or 9 months or soemthing like that. He is steadily getting to where he should be. He is climbing absolutely everything!!! Coffee table, couches, standing on his toys.

We had his EI eval, and they determined that he is at an 8 month level for his speech. I knew he was behind and have been trying to get this all started for ever. Well anyways the new person came and she is so wonderful. She thinks that Sam will catch up speech wise very quickly. She just kept saying that he was such a love. And I absolutely agree....

IV rehydration take two

Well after I spoke with the doctor yesterday I had to go back in for more IV fluids. I am so frustrated. She gave me two doses of IV nausea medicine that seemed to help for a while so then they let me come home. Of course I was happy to come home and spend time with my boy. Well last night I started vomiting again and have continued to do so. I am so annoyed. I just wish that this would be over. THe doctor called and checked on me last night and will be calling again this morning. I wonder what her plan will be for today. I feel like I have not seen or played with Sam all week. This ridiculous IV in my arm is in the way of cuddling him like I would like. He is so cute. He keeps trying to snuggle closer and closer into me, I think if he could he would climb inside. It is so nice to feel so loved. Today is our five year anniversary. WE are supposed to go away to Cape Cod, so hopefully I will feel better.

IV rehydration take one

Well don't I feel a little silly. Even though I have felt like crap all week, and was puking quite a bit with a migraine on top of it, I felt like I was okay for the most part with the hyrdration part of things. I guess not. I called the doctor yesterday morning and she wanted to see me, as it was my second/third day with a migraine and vomiting. So my brother in law drove me because my head was pounding, and the Dr said I think your a little dry. Lets give you a liter of fluid and see if that helps. Well 7 IV attempts later (with two ICU nurses and finally a doctor) they finally got a little tiny IV in because my veins were all collapsing from being dehydrated. So anyways they give me a liter of fluid, and I still couldn't pee, and then another and still couldn't pee, and then a third and I finally went the tiniest little bit. THey let me come home, only to say that if I threw up again ( which I did almost as soon as I cam home) that I would have to return today. So now I am waiting for 9 am to role around so I can call the doc and see what the plan is for today.

I feel like I haven't seen Sam all week. Thank goodness for Grandmothers. Matt's mom and mine each have watched him this week and will probably again today. I still have the IV in, because they didn't want to risk sticking me a million and one times again today, I guess that is the benefit to being a nurse.

Sammy is doing so good. And guess what?!?!?! He slept all the way through the night last night. I can't believe it. It has happened sporadically but it was nice that it was last night when i am not quite feelign up to my normal routine.

A fun day

Well today we had plans to go to the Davis Farmland, had the thought to call first and found out that they will closed, then we decided to go to the Acton Children's Discovery Museum. So we all treck down there only to find out that they are closed for renovations. Hmmm, what to do with six kids all under 3? We took them all to McDonalds (crazy right) and then we went to this awesome park that is specifically for kids under five. IT was wonderful and the kids had a blast.
Sammy 's face is healing nicely. He is running now, and falling less. He is getting to be so independant, and even tried doing stairs by himself.
I am feeling crappy as usual. Today I have only vomited twice which is an improvemnt but still leaves me quite exhausted.
I will post pics tomorrow.

Sammy meets the sidewalk

Well my poor little munchkin decided that he wanted to meet the sidewalk. As you can see from the pictures it wasn't a good meeting. He cried for like 30 seconds and then he was fine. He just looks so pitiful though. He has had such a rough week. He has been sleeping horribly, waking every two to three hours. I am at my wits end. My mom will be taking him tonight to let us sleep as I have to work the weekend.

Playground fun

We took Sammy to the playground to get some fresh air before the cold weather comes. ANd you know what he had fun playing with? The rocks!!!

IV IG

Well today went well. It was such a long day. We left my house at 6:45am and didn't get home until 7:15pm!!! We hit rush out traffic going in and coming out of Boston. The people were wonderful. It took about 45 minutes to get the IV in, and two attempts, but they had this wonderful woman named Kaydesha who is a Child Life Specialist. Anyways she just distracted him during the IV and he barely even wimpered. And then the transfusion began. It took about 6 hours total and he did fantastic. THey kept bringing in all kinds of toys and snacks, so he was kept entertained. He also took about an hour nap which was great. Everyone kept admiring him and saying how cute he was, I couldn't help but agree:) He loves my sunglasses and so that kept him entertained for quite a while. I think that I had a rougher time with it than he did. I started to cry when we first got there, it was just so overwhelming, thank goodness my mom came, for the emotional suport. Thanks for all your prayers

Tomorrow is the big day

Well tomorrow is our trip to Children's for Sam's IV IG transfusion. I must say that I am quite stressed and worried about it. I am worried that they will have a hard time with the IV, I am worried that he won't sit still for the five hours of the transfusion, and I am worried that he will have some sort of negative reaction to the infusion. Please pray that things will go smoothly and my little munchkin will feel good and this will keep him healthy.

It's official

Well we are expecting again!!! I have gotten over the shock, but am still feeling quite overwhelmed. I didn't think that birth control would fail. We are excited although I am quite scared as with Sam we had such a rough go of it. Our due date is April 18,2008! Hope you enjoy the pictures of Sammy's reaction. He will be 21 months old when this new little miracle gets here. HE seems pretty excited! We had an ultrasound today and everything looks good. The heartbeat was 162.

Cute pictures

Well Sammy needed a bath and I didn't want to give him a bath in the tub so here is a bath in the sink. Thank goodness for big kitchen sinks:) He seemed to enjoy it and it uses less water than the big tub, not to mention he likes to play with the running water and dunk his head under. The last one is of course my squeaky clean little man:) I heard from my brother Dennis yesterday!! He got promoted to E-6 at 22 years old!! I am so incredibly proud of him

Play time with my Dad

If you look closely you can see Sammy peaking out the window at his daddy. If you could just hear him sqealing with delight when he sees him, you would laugh. It was so wonderful

What A Difference a Year makes

Well last year as you can see we took Sam to the Red Apple Farm, and we took him again this year. He had so much fun. He was picking his own apples and eating them just as fast as he could, not that he could do anything but just scrape a tiny bit off. We had such a fun day, unfortunatley they didn't have the types of apples we were looking for, so we will go again at a later date. I don't think Sam will mind.

Immunology update take 2

Well I have heard back from the immunologist. Now the plan is to do the IV gammaglobulin monthly through spring of 2009!!! I am so discouraged and overwhelmed. After a year of him being sick for what seems like all of the time, I thought the fix would be done by next summer. I thought we would just have one more year of craziness and that would be it. But unfortunately for us that is not the case:( They had also done some other blood work and Sam's liver function tests were elevated a few weeks ago, then they came back down to normal levels and then now they are higher than they had been. I just wish I knew what was ultimately going on with this little guy. Although we now have a plan for the immunolgy stuff now there is this liver problem that we now have to deal with.

On a happier note he is walking everywhere!!! He walks like frankenstein with his arms straight out in front of him to help his balance. It is so cute. He found a pacifier in his toy box today and sucked and chewed on it for most of the day!!! It was so funny, he never took a pacifier taht good but now it was like a fun toy for him.

Tomorrow we have the appointment with the gastrointerologist. I am not really sure what will happen at that appointment. Maybe he will have some insight into all of the liver stuff.

A blast at the beach

Today was such a fantastic day. We got together with our family in NH and it was just wonderful...The water was so warm, and there was a nice breeze. The water was so shallow that Sam could crawl or walk with minimal assistance all over the place. Dasanee didn;t want to have anything to do with the sand and was much more content to sit in one place than explore like her cousin. Thanks to everyone for all the great food!!!